Eurordis
We are a non-governmental European alliance of patient organisations and individuals dedicated to improving the lives of people affected by rare diseases.
European Cancer Patient Coalition
Established in 2003, the European Cancer Patient Coalition is the voice of the European cancer patient community, uniquely representing the interests of all cancer patient groups from the most common to the rare forms of cancer.
GIST Support International
GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST cancer), family members, friends, and interested professionals.
The Carcinoid Cancer Foundation
CCF’s mission is to educate patients, healthcare professionals and the public regarding carcinoid and related neuroendocrine tumors,to bring about greater awareness of these rare cancers, to support NET cancer patients and their families, and to serve as patient advocates.